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Health literacy in parents of children with Hirschsprung disease: a novel study

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Topic overview

This Norwegian study assessed health literacy in 132 parents of children with Hirschsprung disease, finding that while parents effectively understand and engage with health information, they report inadequate provider support and struggle with information appraisal. The research identifies vulnerable subgroups—younger, less-educated, non-cohabitating parents and non-native speakers—who would benefit from targeted health literacy interventions to improve care outcomes.

Key takeaways

  • Parents of children with Hirschsprung disease report inadequate provider understanding of their child's specific challenges and needs.
  • Health literacy is lower among young parents, those with less education, non-cohabiting parents, and non-native language speakers.
  • Parents struggle most with appraising health information quality and accessing social support despite high engagement levels.
  • Higher parental self-efficacy strongly correlates with better health literacy scores across all domains.
  • Targeted health literacy interventions should focus on vulnerable parent groups to improve care navigation and outcomes.

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How to cite: GlobalCastMD. Health literacy in parents of children with Hirschsprung disease: a novel study. GlobalCastMD Medical Library. 2024-12-05. https://dev.library.globalcastmd.com/article/9492?via_space=staycurrentmd

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