Follow-up and transition practices in esophageal atresia: a review of European Reference Network on rare Inherited and Congenital Anomalies (ERNICA) centres and affiliates
Topic overview
This survey of 29 European centers reveals significant variability in esophageal atresia follow-up practices, with only two-thirds offering dedicated multidisciplinary clinics and 55% having transition pathways. Resource limitations and poor awareness of existing ERNICA/ESPGHAN guidelines contribute to inconsistent care delivery across the network.
Key takeaways
- Two-thirds of ERNICA centers have dedicated EA clinics with MDT, but 40% restrict access to complex cases only due to resource constraints.
- Routine investigation protocols vary widely; only 24% of centers provide the recommended three endoscopies during follow-up.
- Just 55% of centers have formal transition pathways, with ERNICA members significantly outperforming affiliates (81% vs 30%).
- Awareness of ESPGHAN and ERNICA follow-up guidelines is poor at 28%, contributing to non-uniform care delivery across Europe.
- Resource limitations are the primary barrier (67%) preventing centers from establishing comprehensive MDT follow-up clinics.
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How to cite: GlobalCastMD. Follow-up and transition practices in esophageal atresia: a review of European Reference Network on rare Inherited and Congenital Anomalies (ERNICA) centres and affiliates. GlobalCastMD Medical Library. 2024-11-09. https://dev.library.globalcastmd.com/article/9410?via_space=staycurrentmd
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