Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study
Topic overview
This UK national study of 83 pediatric stoma patients reveals a gap in preoperative counseling: while parents felt well-informed about surgical and practical aspects, they received inadequate preparation for psychosocial impacts. Children identified daily-life challenges like bag leaks and self-consciousness as more distressing than surgical complications, highlighting the need for enhanced lifestyle and psychological counseling.
Key takeaways
- Parents felt well-informed about surgical/stoma care aspects but poorly informed about psychological and social impacts of pediatric stomas.
- Patients rated psychosocial issues (bag leaks, self-consciousness, activity restrictions) as worse than surgical complications.
- 54% experienced surgical complications, but only 24% listed these among worst aspects versus 91% citing distress from bag leaks.
- Preoperative counseling should emphasize lifestyle impacts and psychosocial preparation, not just technical stoma management.
- Gap exists between what clinicians prioritize in counseling versus what matters most to pediatric patients living with stomas.
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How to cite: GlobalCastMD. Are we informing our patients correctly? Evaluation of perioperative counselling for paediatric intestinal stoma formation: a national study. GlobalCastMD Medical Library. 2024-07-15. https://dev.library.globalcastmd.com/article/8858?via_space=staycurrentmd
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